The European Conference on Rare Diseases & Orphan Products (ECRD), Europe’s largest patient-led policy event, will take place from 3–4 June 2026 in Prague. Under the theme “Rare Diseases in a Changing & Competitive Europe”, the on-site and online conference will bring together patients, advocates, policymakers, clinicians, healthcare industry representative, and regulators to shape policies that address the unmet needs of people living with rare diseases.
This event will also mark the launch of the European Blueprint for Rare Diseases, the result of a collaborative process designed to ensure a lasting impact across Europe.


