In health, information sharing is crucial. From this point of view, the European Health Data Space, officially launched in May 2022, will play a central role.
In the case of rare diseases, it will build on the experience of the European Reference Networks. Watch the Euronews report, partly shot in Strasbourg, in the department of Pr Hélène Dollfus, Coordinator of the European Reference Network for Rare Eye Diseases ERN-EYE, and in Ghent, in the department of Pr Bart Leroy and Pr Elfride de Baere.