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Partners

Together 4 rare Diseases (T4RD)

Together for Rare Diseases (Together4RD) is an agile multi-stakeholder initiative aimed at supporting ERNs to collaborate with stakeholders to...

Partners

EJP RD

The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions

Partners

HPO

The Human Phenotype Ontology (HPO) aims to provide a standardized vocabulary of phenotypic abnormalities encountered in human...

Partners

Orphanet

Orphanet is the portal for rare diseases and orphan drugs, it’s the european reference for the classification and...

Partners

RD action

RD action is highly involved to help ERNs to set up the work.

Representative :