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ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases 

Rare Eye Diseases (RED)

⇒ The leading cause of visual impairment and blindness for children and young adults in Europe

⇒ More than 900 REDs 

⇒ From the most prevalent diseases such as retinitis pigmentosa (estimated prevalence of 1 in 5 000) to some very rare entities described only once or twice in medical literature

ERN-EYE member simple map

ERN-EYE, 29 members in 13 countries across European Union

 to guarantee the best coverage of more than 900 Rare Eye Diseases

  • Coordinator: Pr Hélène Dollfus, Hôpitaux Universitaires de Strasbourg, France
  • All members were approved by their national authority and positevely assessed by a independant body


All HCPs members

4 clinical thematic working groups

ERN EYE addresses these conditions in four thematic groups:

  • Retinal rare eye diseases
  • Neuro-ophthalmology rare diseases
  • Paediatric ophthalmology rare diseases
  • Anterior segment rare eye diseases

6 transversal working groups

These groups are addressing issues common to the four main themes. Additional working groups focus on specific areas, including

  • Low vision, daily life and patient group
  • Genetic diagnostics
  • Registries & epidemiology
  • Research
  • Education,training & guidelines
  • Communication, management & quality




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Conference of ophtalmology

The 2nd Conference Ophthalmology Journal is organized by Via Medica and will be held during Feb 09 - 10, 2018 at LublinLubelskie, Poland.

4th European Days of Albinism (4EDA)

 4EDA will take place in Norway, March 7th-10th, 2018.

European Course on Genetics in Hereditary Retinal Disease

The European Course on Genetics in Hereditary Retinal Disease will take place on December 1-2, 2017 with Scientific Coordination of Prof. Carel Hoyng and Prof. Camiel J. F. Boon, member of ERN-EYE.

International Congress On Research Of Rare And Orphan Diseases

Re(act) Congress, 7th-10th March in Bologna

RD-ACTION & DG Sante Workshop

RD-ACTION and DG Sante organize a workshop on 6th and 7th December 2017 at Istituto Superiore di Sanita in Italy. 

ARVO 2018 Annual Meeting

The ARVO 2018 Annual Meeting in Honolulu, Hawaii, will gather 11,000 international basic and clinical researchers and share the latest breakthroughs in vision research.




This ERN is supported by: