Navigation :

How to use the speech recognition tool?

ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases 

Rare Eye Diseases (RED)

⇒ The leading cause of visual impairment and blindness for children and young adults in Europe

⇒ More than 900 REDs 

⇒ From the most prevalent diseases such as retinitis pigmentosa (estimated prevalence of 1 in 5 000) to some very rare entities described only once or twice in medical literature

ERN-EYE member simple map

ERN-EYE, 29 members in 13 countries across European Union

 to guarantee the best coverage of more than 900 Rare Eye Diseases

  • Coordinator: Pr Hélène Dollfus, Hôpitaux Universitaires de Strasbourg, France
  • All members were approved by their national authority and positevely assessed by a independant body


All HCPs members

4 clinical thematic working groups

ERN EYE addresses these conditions in four thematic groups:

  • Retinal rare eye diseases
  • Neuro-ophthalmology rare diseases
  • Paediatric ophthalmology rare diseases
  • Anterior segment rare eye diseases

6 transversal working groups

These groups are addressing issues common to the four main themes. Additional working groups focus on specific areas, including

  • Low vision, daily life and patient group
  • Genetic diagnostics
  • Registries & epidemiology
  • Research
  • Education,training & guidelines
  • Communication, management & quality




Download the ERN-EYE brochure in your language (more languages soon)

République Tchèquečeština (coming soon) cs

Danemarkdansk (coming soon) da

GermanyDeutsch de

Estonieeesti (coming soon) et

EnglishEnglish en

françaisfrançais fr

Italien italiano it

Lettonlatviešu (coming soon) lv

Lithuanianlietuvių lt

Pays-BasNederlands (coming soon) nl

Polskipolski pl

Portugueseportuguês pt


Subscribe to our mailing list

* indicates required

This ERN is supported by: