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ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases 

Rare Eye Diseases (RED)

⇒ The leading cause of visual impairment and blindness for children and young adults in Europe

⇒ More than 900 REDs 

⇒ From the most prevalent diseases such as retinitis pigmentosa (estimated prevalence of 1 in 5 000) to some very rare entities described only once or twice in medical literature

ERN-EYE member simple map

ERN-EYE, 29 members in 13 countries across European Union

 to guarantee the best coverage of more than 900 Rare Eye Diseases

  • Coordinator: Pr Hélène Dollfus, Hôpitaux Universitaires de Strasbourg, France
  • All members were approved by their national authority and positevely assessed by a independant body

 

All HCPs members

4 clinical thematic working groups

ERN EYE addresses these conditions in four thematic groups:

  • Retinal rare eye diseases
  • Neuro-ophthalmology rare diseases
  • Paediatric ophthalmology rare diseases
  • Anterior segment rare eye diseases

6 transversal working groups

These groups are addressing issues common to the four main themes. Additional working groups focus on specific areas, including

  • Low vision, daily life and patient group
  • Genetic diagnostics
  • Registries & epidemiology
  • Research
  • Education,training & guidelines
  • Communication, management & quality

 

 

 

Download the ERN-EYE brochure in your language (more languages soon)

République Tchèquečeština (coming soon) cs

Danemarkdansk (coming soon) da

GermanyDeutsch de

Estonieeesti (coming soon) et

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Italien italiano it

Lettonlatviešu (coming soon) lv

Lithuanianlietuvių lt

Pays-BasNederlands (coming soon) nl

Polskipolski pl

Portugueseportuguês pt

 

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This ERN is supported by: