DARE Fest 2022 was held online from 11 to 19th June 2022. The aim of this week was to raise awareness on Refsum Disease. Global DARE Foundation released over 20 new Refsum videos including live webinars. Topics included the updated dietary guidance, patient experience, clinical guidance, avenues of research and many educational videos. These videos and recorded webinars are available on the DARE Fest 2022 playlist on Global DARE’s YouTube Channel.
During DARE Fest 2022, Global DARE Foundation also released a new video produced by a student team at Seton Hall.