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Project Management Team & chairs of all working groups
Project management team
Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE
Dorothée Leroux
Project Manager of ERN-EYE
HUS, FRANCE
Isabella Vacchi
Project Manager of ERN-EYE
HUS, FRANCE
Amélie Gavard
Medical Writer
HUS, FRANCE
Bernard Coupez
Administrative and Financial Project Manager
HUS, FRANCE
Sylvia Rudzki
Coordinator secretary of ERN-EYE
HUS, FRANCE
Communication team
Caroline Wernert-Iberg
Communication officer of ERN-EYE
HUS, FRANCE
Maximin Begin
Graphics designer of ERN-EYE
HUS, FRANCE
CPMS Helpdesk
Francesco Rotolo
IT-Specialist
Help ERN-EYE members for technical problems or questions about the CPMS
HUS, FRANCE
Dr Monika Grudzinska Pechhacker
ERN-EYE MD fellow
Help ERN-EYE members for medical questions about the CPMS
HUS, FRANCE
Chairs of WG1: Retinal Rare Eye Diseases
Bart Leroy
Ghent University Hospital, Belgium
Michael Larsen
Rigshospitalet Glostrup- DENMARK
Chairs of WG2: Neuro-Ophthalmology Rare Diseases
Steffen Hamann
Copenhagen, DK
Catherine Vignal-Clermont
Fondation Adolphe de Rothschild, Paris, France
Chairs of WG3: Pediatric Ophthalmology Rare Diseases
Dominique Brémond-Gignac
Hôpital Necker-Paris, France
Susana Noval
Hospital Universitario La Paz
Chairs of WG4: Anterior Segment Rare Eye Diseases
Daniel Böhringer
University Medical Center, Freiburg - GERMANY
Petra Liskova
Center of Clinical Ophthalmic Genetics, Department of Ophthalmology, General University Hospital in Prague, Czech Republic
Chairs of TWG5: Low Vision, Daily Life and Patients Groups
Agnese Suppiej
Center for Retinitis Pigmentosa of the Veneto Region - Camposampiero Hospital
(Azienda ULSS 6 Euganea, Padova, Italy)
David Keegan
ERN-EYE Ireland Consortium (EEIC)
Chairs of TWG6: Genetic Diagnostics
Susanne Kohl
Centre for Ophthalmology, University
Eye Hospital, Tübingen, Germany
Elfride De Baere
Ghent University Hospital, Belgium
Chairs of TWG7: Registries & Epidemiology
Christina Fasser
Supporting Partner
Chairs of TWG8: Research
Katarina Stingl
Centre for Ophthalmology, University
Eye Hospital, Tübingen, Germany
Camiel Boon
LUMC/AMC - THE NETHERLANDS
Chairs of TWG9: National Integration
Hélène Dollfus
HUS-FRANCE
Chairs of TWG10: CPMS & Digital Medecine
Hélène Dollfus
HUS - FRANCE
Dorothée Leroux
HUS - FRANCE
This ERN is supported by:
