Experiences of participants in the short exchange programme
Knowledge sharing and stimulating collaboration between health care professionals in European Reference Networks (ERN) is the aim of the ERN Exchange Programme, funded by the European Commission in the frame of the ERN-EYE 23-27 activities. The ERN-EYE short exchange programme is meant to meet goals and strengthen capacity on the network level. The thematic scope includes medical practice and skills but also organisational aspects of a network.
Dr Thomas Georgi (Department of Ophthalmology, Medical University of Graz, Austria)
Report on my observership at the University Eye Clinic in Tübingen, organised by the ERN-EYE short exchange programme
In early December 2024, I had the opportunity to spend a one-week observership at the University Eye Clinic in Tübingen, at the Center for Rare Diseases, following an invitation from Prof. Katharina Stingl. As an ophthalmologist in Graz, my goal was to gain insights into the diagnostic workflow, genetic database management, and interdisciplinary collaboration in rare ophthalmic diseases.
During my stay, I observed the structured diagnostic process, which integrates advanced imaging, electrophysiology, and genetic testing. The clinic maintains an extensive genetic database that supports both clinical decision-making and research, particularly in identifying candidates for emerging gene therapies and clinical trials. I was impressed by the high level of clinical expertise and the seamless cooperation between specialists in ophthalmology, genetics, and electrophysiology.
A key takeaway from my visit was the clinic’s strong collaboration with patient advocacy groups such as Pro Retina. These organizations provide essential support, education, and connections to research initiatives. Inspired by this approach, I aim to strengthen similar collaborations in Graz, ensuring better patient support and integration into scientific advancements.
Beyond the professional experience, I also enjoyed exploring Tübingen, a charming city with a rich history. Visiting during the pre-Christmas season made it especially picturesque, with festive decorations and a cozy atmosphere.
Overall, my time in Tübingen was highly enriching, providing valuable insights that will influence my clinical practice. I am grateful for the invitation from Prof. Stingl and look forward to future exchanges with my colleagues in Tübingen.
Dr Milda Reith (University Hospital of Tübingen, Germany)
Short exchange in Ghent, Belgium
The ERN-EYE Exchange Program offers professionals in the field of ophthalmology a unique opportunity to share knowledge and experience in the treatment of rare eye diseases. My stay at the renowned eye clinic in Ghent was marked by professional exchange and inspiring insights into European collaboration in the field of rare diseases and ophthalmogenetics.
The eye clinic in Ghent, known for its expertise in diagnosing and treating rare genetic eye diseases, was the ideal place to deepen my knowledge. During the program, I had the opportunity to network in different consultations and teams that brought together genetic, clinical, and technical expertise.
A key focus of the exchange was networking and knowledge exchange. This is extremely valuable between similarly working teams in Ghent and Tübingen. Direct contact with leading experts and insight into their working methods proved to be highly enriching.
Additionally, the program offered a cultural dimension: the exchange not only fostered professional networking but also enhanced understanding of healthcare systems in other countries. The warm welcome by the team in Ghent and the opportunity to become part of a Europe-wide network of experts were invaluable experiences for me both personally and professionally.
The stay in Ghent broadened my perspective and inspired me to actively promote international collaboration in the field of rare eye diseases. I am convinced that programs like ERN-EYE are crucial in improving the care of patients with rare conditions.
Dr Ineta Turka (Children Hospital, Riga, Latvia)
Short exchange in Timisoara, Romania
I had the privilege of participating in the ERN-Eye Exchange Program, which allowed me to visit the ERN-Eye Rare Eye Disease Center in Timisoara, Romania. During my week-long stay, I engaged in both adult and pediatric patient examinations, gaining valuable hands-on experience.
My supervisor, Dr. Florina Stoica, was incredibly open to discussion and collaboration, making the experience both educational and enriching. I also had the opportunity to observe genetic consultations at the genetics clinic and visited the Pufan Center, which specializes in early intervention programs for children with low vision.
Additionally, we visited the Neonatal Intensive Care Unit, where I observed procedures related to retinopathy of prematurity. Dr. Stoica introduced me to her multidisciplinary team, including doctors, optometrists, physiologists, and student volunteers. Together, we conducted various tests and reviewed imaging for patients with retinal dystrophies, NF1, and other conditions.
Dr. Stoica and her team generously shared their contact information, which will be invaluable for my future work with patients. Her kindness and charisma in communicating with patients left a lasting impression on me.
I look forward to future collaboration and fostering a lasting relationship with the ERN-Eye Rare Eye Disease Center in Timisoara.
Finally, I thoroughly enjoyed my time in Timisoara, a city rich in history and culture, and I am grateful for the opportunity to experience its unique charm.
