Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1000 stakeholders in the rare disease community – patient advocates, policy makers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators and Member State representatives.
With the European elections approaching, at the inception of a new term for the European Parliament and the European Commission, the 12th ECRD becomes a key driver in shaping policies to address the unique needs of people with rare diseases and their families over the next five years.
The ECRD’s value is underscored by its alignment with EURORDIS’ priorities for the EU elections, evident in its comprehensive six-session agenda.
What sets the ECRD apart is its integration into broader rare disease policy and healthcare ecosystem efforts. Rooted in the recommendations of the Rare 2030 Foresight Study, the ECRD continues to build on this comprehensive review of the strategy for rare diseases and shape the thinking of policymakers and the community, encouraging a more streamlined and proactive approach to addressing the unmet needs of people living with rare diseases and the persisting inequalities across Europe.
ECRD REGISTRATIONS https://www.rare-diseases.eu/register
POSTER ABSTRACT SUBMISSIONS (until 23/02)-> https://www.rare-diseases.eu/posters/
