How to use the speech recognition tool?
Svetovalni svet za bolnika in družine (PaFAC)
Bolniki in predstavniki bolnikov so v celoti vključeni v ERN-EYE mrežo.
EURORDIS, evropska mreža združenj bolnikov, je bila ustanovljena na pobudo evropskih referenčnih mrež (angl. European Reference Networks, ERNs). Evropska skupina zagovornikov bolnikov je bila ustanovljena v vsaki ERN mreži.
V ERN-EYE vsi predstavniki bolnikov, ki so lahko del ePAG ali ne, sestavljajo odbor za svetovanje bolnikom in družinam (angl. Patient & Family Advisory Council, PaFAC). 2 predstavnika bolnikov, ki sta del tega odbora, sta tudi v upravnem odboru.
ERN-EYE ePAG representatives
ERN-EYE ePAG* roles and responsibilities
Dominique Sturz
BSVÖ Austrian Association for the Blind & Partially Sighted & Usher Deafblind Forum Austria
Austria
ePAG Chair, representative in the Governance Board
Petia Stratieva
Bulgaria
ePAG Co-Chair, representative in the Governance Board
*European Patient Advocacy Group
**Supporting Partner
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WG1: Retinal Rare Eye Diseases |
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WG2: Neuro-Ophthalmology Rare Diseases |
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WG3: Pediatric Ophthalmology Rare Diseases |
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WG4: Anterior Segment Rare Eye Diseases |
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TWG5: Low Vision, Daily Life and Patients Groups |
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TWG6: Genetic Diagnostics |
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TWG7: Registries & Epidemiology |
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TWG8: Research |
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TWG9: National Integration |
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TWG10: CPMS & Digital Medecine |
ERN-EYE invites you to meet ePAG representatives within the network through a short interview
Contact
You can contact the ePAG representatives at contact@ern-eye.eu