How to use the speech recognition tool?

Svetovalni svet za bolnika in družine (PaFAC)

 

 

Bolniki in predstavniki bolnikov so v celoti vključeni v ERN-EYE mrežo.

EURORDIS, evropska mreža združenj bolnikov, je bila ustanovljena na pobudo evropskih referenčnih mrež (angl. European Reference Networks, ERNs). Evropska skupina zagovornikov bolnikov je bila ustanovljena v vsaki ERN mreži.

V ERN-EYE vsi predstavniki bolnikov, ki so lahko del ePAG ali ne, sestavljajo odbor za svetovanje bolnikom in družinam (angl. Patient & Family Advisory Council, PaFAC). 2 predstavnika bolnikov, ki sta del tega odbora, sta tudi v upravnem odboru.

 

 

 

ERN-EYE ePAG representatives

ERN-EYE ePAG* roles and responsibilities

DominiqueDominique Sturz

BSVÖ Austrian Association for the Blind & Partially Sighted & Usher Deafblind Forum Austria

Austria

ePAG Chair, representative in the Governance Board

WG3, TWG6, TWG9, TWG10

 

 

Petia StratievaPetia Stratieva

Retina International

 

Bulgaria

ePAG Co-Chair, representative in the Governance Board

WG1, TWG5, TWG6, TWG8

 

 

Russell Wheeler Russell Wheeler

LHON Society UK

 

UK

ePAG 

WG2, TWG7 

 

Michael LaengsfeldMichael Laengsfeld

Pro Retina Germany

 

Germany

WG1, TWG7

 

 

Rosa Sanchez

Aniridia Europe

 

Spain

WG4, TWG7

 

 

Sébastien Montahuc

Association Gêniris

 

France

WG4, TWG7

 

 

Christina Fasser 2Christina Fasser

 

Switzerland

SupP*

WG1, TWG5, TWG7

 

 

*European Patient Advocacy Group

**Supporting Partner

List of the working groups

WG1: Retinal Rare Eye Diseases

WG2: Neuro-Ophthalmology Rare Diseases
WG3: Pediatric Ophthalmology Rare Diseases
WG4: Anterior Segment Rare Eye Diseases
TWG5: Low Vision, Daily Life and Patients Groups
TWG6: Genetic Diagnostics
TWG7: Registries & Epidemiology
TWG8: Research
education TWG9: National Integration
TWG10: CPMS & Digital Medecine

ERN-EYE invites you to meet ePAG representatives within the network through a short interview

Contact

You can contact the ePAG representatives at contact@ern-eye.eu

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This ERN is supported by: