මධ්යස්ථානය සම්බන්ධ කර ගන්නේ කෙසේද
HCP මධ්යස්ථානය
2006-2011 දුර්ලභ රෝග සැලැස්මේ කොටසක් ලෙස, 2017 දී නැවත ලේබල් කිරීම. OPHTARA යනු
පැරිස් විශ්ව විද්යාල රෝහල් අඩවි 5ක් සහිත ERN-EYE හි අද්විතීය ඒකාබද්ධ කොටස: නෙකර්
(සම්බන්ධීකරණ අඩවිය), Pitié Salpetrière, HEGP, Cochin සහ Hôtel Dieu (සංරචක අඩවි).
පින්තූරය: සෙලෙට්
අමතන්න
OPHTARA – AP-HP, Hôpital Necker-Enfants Malades, Paris, France
කණ්ඩායම
Pr Dominique BREMOND-GIGNAC
ප්රංශය
Dr Alejandra Daruich-Matet
ප්රංශය
Pr Matthieu Robert
ප්රංශය
සායනික පරීක්ෂණ
Open-label, Single-arm, Multicenter Study to Assess the Safety of Cystadrops® in Pediatric Cystinosis Patients From 6 Months to Less Than 2 Years Old
Study of the efficacy of Befizal® 200mg in the treatment of Leber’s hereditary optic neuropathy
Function of the Pigment Epithelium in Patients With Type 1 Neurofibromatosis (NEF-1)
Interest of Intravitreal Injections of Anti-VEGF as Initial and Adjuvant Treatment in Coats Disease.
A phase II, open-label, efficacy study of daily administration of sodium valproate in patients clinically affected by Wolfram syndrome due to monogenic mutation.
A Non-interventional Study of Clinical Experience in Patients Prescribed Raxone® for the Treatment of Leber’s Hereditary Optic Neuropathy (LHON).
Efficacy, Safety and Pharmacokinetics of 3 Doses of REC 0/0559 Eye Drops for the Treatment of Stage 2 (Moderate) and 3 (Severe) Neurotrophic Keratitis in Adult Patients
An International Prospective Natural History Study in Children With a Type II Collagen Disorder With Short Stature
Genetic Study of Patients Suffering From Congenital Amaurosis of Leber or From an Early Severe Retinal Dystrophy.
Genetic Decryption of Leber Congenital Amaurosis (LCA) in a Large Cohort of Independent Families.