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Skupina za vodenje projekta in vodje vseh delovnih skupin
Skupina za vodenje projekta
Pr Hélène Dollfus
ERN-EYE koordinator
HUS, FRANCE
Dorothée Leroux
ERN-EYE projektni direktor
HUS, FRANCE
Isabella Vacchi
Project Manager of ERN-EYE
HUS, FRANCE
Amélie Gavard
Medical Writer
HUS, FRANCE
Bernard Coupez
Administrative and Financial Project Manager
HUS, FRANCE
Sylvia Rudzki
ERN-EYE tajnik koordinatorja
HUS, FRANCE
Ekipa za odnose z javnostjo
Caroline Iberg
ERN-EYE predstavnik za odnose z javnostjo
HUS, FRANCE
Maximin Begin
Graphics designer of ERN-EYE
HUS, FRANCE
CPMS Helpdesk
Francesco Rotolo
IT-Specialist
Help ERN-EYE members for technical problems or questions about the CPMS
HUS, FRANCE
Dr Monika Grudzinska Pechhacker
ERN-EYE MD fellow
Help ERN-EYE members for medical questions about the CPMS
HUS, FRANCE
Vodje WG1: redke bolezni mrežnice
Bart Leroy
Ghent University Hospital, Belgium
Michael Larsen
Rigshospitalet Glostrup- DENMARK
Vodje WG2: redke nevrooftalmološke bolezni
Steffen Hamann
Copenhagen, DK
Catherine Vignal-Clermont
Fondation Adolphe de Rothschild, Paris, France
Vodje WG3: redke pediatrične oftalmološke bolezni
Dominique Brémond-Gignac
Hôpital Necker-Paris, France
Susana Noval
Hospital Universitario La Paz
Vodje WG4: redke bolezni sprednjega očesnega segmenta
Daniel Böhringer
University Medical Center, Freiburg - GERMANY
Petra Liskova
Center of Clinical Ophthalmic Genetics, Department of Ophthalmology, General University Hospital in Prague, Czech Republic
Vodje TWG5: slab vid, vsakodnevno življenje in skupine bolnikov
Agnese Suppiej
Center for Retinitis Pigmentosa of the Veneto Region - Camposampiero Hospital
(Azienda ULSS 6 Euganea, Padova, Italy)
David Keegan
ERN-EYE Ireland Consortium (EEIC)
Vodje TWG6: genetska diagnostika
Susanne Kohl
Centre for Ophthalmology, University
Eye Hospital, Tübingen, Germany
Elfride De Baere
Ghent University Hospital, Belgium
Vodje TWG7: registri in epidemiologija
Christina Fasser
Supporting Partner
Vodje TWG8: raziskovanje
Katarina Stingl
Centre for Ophthalmology, University
Eye Hospital, Tübingen, Germany
Camiel Boon
LUMC/AMC - THE NETHERLANDS
Vodje TWG9: okvirni načrt izobraževanja, usposabljanja in smernic
Hélène Dollfus
HUS-FRANCE
Vodje TWG10: odnosi z javnostjo, vodenje in kakovost
Hélène Dollfus
HUS - FRANCE
Dorothée Leroux
HUS - FRANCE
This ERN is supported by:
