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Skupina za vodenje projekta in vodje vseh delovnih skupin
Skupina za vodenje projekta
Pr Hélène Dollfus
ERN-EYE koordinator
HUS, FRANCE
Dorothée Leroux
ERN-EYE projektni direktor
HUS, FRANCE
Ivana Prokic
Scientific Project Manager
HUS, FRANCE
Yann Brelivet
Project Manager for EU program REDgistry
HUS, FRANCE
Sylvia Rudzki
ERN-EYE tajnik koordinatorja
HUS, FRANCE
Ekipa za odnose z javnostjo
Caroline Iberg
ERN-EYE predstavnik za odnose z javnostjo
HUS, FRANCE
Claire Edel
ERN-EYE grafični oblikovalec
HUS, FRANCE
CPMS Helpdesk
Francesco Rotolo
IT-Specialist
Help ERN-EYE members for technical problems or questions about the CPMS
HUS, FRANCE
Vodje WG1: redke bolezni mrežnice
Bart Leroy
UG- BELGIUM
Michael Larsen
Rigshospitalet Glostrup- DENMARK
Vodje WG2: redke nevrooftalmološke bolezni
Steffen Hamann
Copenhagen, DK
Jerome De Seze
HUS, France
Vodje WG3: redke pediatrične oftalmološke bolezni
Birgit Lorenz
UKGM- GERMANY
Jane Ashworth
MREH-MAHSC- UK
Vodje WG4: redke bolezni sprednjega očesnega segmenta
Thomas Reinhard
UMCF- GERMANY
Petra Liskova
HPH- CZECH REPUBLIC
Vodje TWG5: slab vid, vsakodnevno življenje in skupine bolnikov
Agnese Suppiej
Center for Retinitis Pigmentosa of the Veneto Region - Camposampiero Hospital
(Azienda ULSS 6 Euganea, Padova, Italy)
David Keegan
MMUH - IRELAND
Vodje TWG6: genetska diagnostika
Graeme Black
MREH- MAHSC- UK
Elfide De Baere
Ghent University Hospital, Belgium
Vodje TWG7: registri in epidemiologija
Christina Fasser
Retina International
Kamron Khan
JUH- UK
Vodje TWG8: raziskovanje
Katarina Stingl
EKUT- Germany
Camiel Boon
LUMC/AMC - THE NETHERLANDS
Vodje TWG9: okvirni načrt izobraževanja, usposabljanja in smernic
Thomas Wheeler-Schilling
EKUT- GERMANY
Hélène Dollfus
HUS-FRANCE
Vodje TWG10: odnosi z javnostjo, vodenje in kakovost
Hélène Dollfus
HUS - FRANCE
Dorothée Leroux
HUS - FRANCE
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