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NEWS

Articles de la catégorie News GRAND PUBLIC

The European Commission published a new video to understand what is an ERN and how it works.

27 November 2018

Organised by EURORDIS-Rare Diseases Europe, and co-organised by Orphanet and DIA, the 9th edition of the European Conference on Rare Diseases & Orphan Products took place in Vienna from 10 – 12...

15 November 2018

The EURORDIS Black Pearl Awards is an annual event held in Brussels to recognise the outstanding achievements and exceptional work of people making a difference for the rare disease community.

15 November 2018

The launching of the ERN-EYE dedicated helpdesk started the 1st of October.

22 October 2018

The leaders of each clinical WG have been able to test the platform and give their feedback.

 

19 October 2018

Associate Professor Petra Lišková introduced the network and its main goals to the Czech ophthalmologists.

18 October 2018

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