NEWS

Don't miss your chance to nominate your star of the rare disease community, or enter yourself, for one of the EURORDIS Black Pearl Awards 2022.

Read more about the key findings!

A public consultation is now open until 30^th July 2021 and will be followed by a legislative proposal in early 2022. 

The result of this DPIA shows that the CPMS responds to the security standards of personal data for the rights and freedoms of natural persons.

44 "packages" of one week exchange between health professionals working in the ERN-EYE centres will be granted. 

Two guidelines are being elaborated with the relevant ERN-EYE working groups.