Como entrar em contato com o centro
Centro de saúde
como parte do Plano para Doenças Raras 2006-2011, renomeado em 2017. OPHTARA é
consórcio único que faz parte do ERN-EYE com 5 locais de hospitais universitários de Paris: Necker
(site coordenador), Pitié Salpetrière, HEGP, Cochin e Hôtel Dieu (sites componentes).
Foto: Celelette
Contato
OPHTARA – AP-HP, Hôpital Necker-Enfants Malades, Paris, France
Time
Pr Dominique BREMOND-GIGNAC
França
Pr Alejandra Daruich-Matet
França
Pr Matthieu Robert
França
Ensaios clínicos
Open-label, Single-arm, Multicenter Study to Assess the Safety of Cystadrops® in Pediatric Cystinosis Patients From 6 Months to Less Than 2 Years Old
Study of the efficacy of Befizal® 200mg in the treatment of Leber’s hereditary optic neuropathy
Function of the Pigment Epithelium in Patients With Type 1 Neurofibromatosis (NEF-1)
Interest of Intravitreal Injections of Anti-VEGF as Initial and Adjuvant Treatment in Coats Disease.
A phase II, open-label, efficacy study of daily administration of sodium valproate in patients clinically affected by Wolfram syndrome due to monogenic mutation.
A Non-interventional Study of Clinical Experience in Patients Prescribed Raxone® for the Treatment of Leber’s Hereditary Optic Neuropathy (LHON).
Efficacy, Safety and Pharmacokinetics of 3 Doses of REC 0/0559 Eye Drops for the Treatment of Stage 2 (Moderate) and 3 (Severe) Neurotrophic Keratitis in Adult Patients
An International Prospective Natural History Study in Children With a Type II Collagen Disorder With Short Stature
Genetic Study of Patients Suffering From Congenital Amaurosis of Leber or From an Early Severe Retinal Dystrophy.
Long-Term Non-Interventional Latanoprost Study
Genetic Decryption of Leber Congenital Amaurosis (LCA) in a Large Cohort of Independent Families.
Prospective Clinical Assessment Study in Children with Hypochondroplasia: ACCEL
An Open-label, Active-Controlled, Safety, and Efficacy Study of Oral Baricitinib in Patients From 2 Years to Less Than 18 Years Old With Active Juvenile Idiopathic Arthritis-Associated Uveitis or Chronic Anterior Antinuclear Antibody-Positive Uveitis