How to use the speech recognition tool?
EURORDIS, a european consortium of patient's associations, was at the initiative of ERNs. Last year they created the european Patient Advocacy Groups in each ERN.
In ERN-EYE, all patients representatives, ePAG or not, formed the Patient & Family Advisory Council (PaFAC). Among this council, 2 patient representatives are part of the governance board.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 755 rare disease patient organisations in 67 countries
CEO : Yann Le Cam
President: Terkel Andersen
Vice President: Avril Daly
european Patient Advocacy Group
ePAG Representatives :
2 PaFAC members are reprensentatives in ERN-EYE Governance Board
Representative 2017 :
This journey was presented during the Third conference on Europen Reference Network in Vilnius by Avril Daly, vice-president of Eurordis and CEO of Retina International.
The 2nd Conference Ophthalmology Journal is organized by Via Medica and will be held during Feb 09 - 10, 2018 at Lublin, Lubelskie, Poland.
4EDA will take place in Norway, March 7th-10th, 2018.
The European Course on Genetics in Hereditary Retinal Disease will take place on December 1-2, 2017 with Scientific Coordination of Prof. Carel Hoyng and Prof. Camiel J. F. Boon, member of ERN-EYE.
Re(act) Congress, 7th-10th March in Bologna
RD-ACTION and DG Sante organize a workshop on 6th and 7th December 2017 at Istituto Superiore di Sanita in Italy.
The ARVO 2018 Annual Meeting in Honolulu, Hawaii, will gather 11,000 international basic and clinical researchers and share the latest breakthroughs in vision research.