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NEWS

Report on RD-Action workshop

RD-Action published a report on the conclusions and next steps from the workshop ‘How ERNs can provide added value in the area of clinical research’. 

06 December 2018
An exchange of expertise between ERN-EYE baltic countries members

Artur Klett, ERN-EYE member and expert of rare oculoplastic and ophthalmooncological diseases, visited Eye disease clinic of Children's Clinical University Hospital in Riga on 15th-16th of November.

03 December 2018
Information video and flyer for patients and healthcare professionals

The European Commission published a new video to understand what is an ERN and how it works.

27 November 2018
9th European Conference on Rare Diseases and Orphan Products - Executive summary

Organised by EURORDIS-Rare Diseases Europe, and co-organised by Orphanet and DIA, the 9th edition of the European Conference on Rare Diseases & Orphan Products took place in Vienna from 10 – 12...

15 November 2018
Russell Wheeler - Winner of the 2019 EURORDIS Black Pearl Awards

The EURORDIS Black Pearl Awards is an annual event held in Brussels to recognise the outstanding achievements and exceptional work of people making a difference for the rare disease community.

15 November 2018
CPMS Helpdesk

The launching of the ERN-EYE dedicated helpdesk started the 1st of October.

22 October 2018

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