NEWS

An open letter signed by all ERNs calling for a renewed and continuous support to the ERNs was published.

ERN-EYE network has created a video to make medical staff aware of how to welcome people with Usher syndrome.

The first patients have been enrolled in REDgistry, after giving their informed consent, at the ERN-EYE coordinator organisation in Strasbourg by Pr Hélène Dollfus.

The paper considers the diverse factors that have impeded the vital collaboration between European Reference Networks (ERNs) and industry to date.

Nominations can be submitted from anywhere in the world until Sunday, 10th September 2023.

Our abstract  submitted after the European Conference on Rare Diseases (ECRD) 2022 was published on 2nd June 2023.