NEWS

Our abstract  submitted after the European Conference on Rare Diseases (ECRD) 2022 was published on 2nd June 2023.

Watch now the replay!

The ERN-EYE Transversal working Group 5 created a survey to get an overview of existing low vision services in Europe.

ERICA is launching a survey to collect information on the status quo of ERNs and Clinical Research.

The aim is to gather inputs of all types of stakeholders to make sure that the actions of the partnership will fit the needs and expectations of rare diseases community.

EURORDIS held a webinar on 4th May 2023 on "Rare Disease National Networks & ERN National Coordination Hubs".