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Training Workshop on Rare Diseases Registries

Kamron Khan, ERN-EYE representative of St. James's University Hospital, and Dorothée Leroux, project manager of ERN-EYE, participated to the Training Workshop on Rare Diseases Registries in Baveno, Italy, on 8th and 9th of February. Baveno February 2018Russell Wheeler, our e-Pag member went to a second session on 20th and 21st February. 

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