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Takeda, Microsoft and EURORDIS release report with action plan to help rare disease community shorten the diagnostic odyssey

 

The Global Commission to End the Diagnostic Odyssey for Children (“the Global Commission”), co-chaired by Takeda, Microsoft and EURORDIS-Rare Diseases Europe, an alliance of more than 800 rare disease patient organisations,  announced its actionable recommendations in a report to address the barriers to diagnosis for people living with a rare disease.

In 2018, the Global Commission Co-Chairs, Shire (now Takeda), Microsoft, and EURORDIS, joined forces to bring together a multidisciplinary group of patient advocates, physicians and other experts to help solve the complex challenges impacting the rare disease community. Over the past year, the Global Commission gathered input from patients, families and other expert advisors to gain key insights to guide solutions to shorten the rare disease diagnosis timeline.

 

Read more about the action of the Global Commission

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