New website REDgistry

REDgistry is a patient registry for Rare Eye Diseases (RED) in Europe. It is a project led by ERN-EYE. The creation of the system is co-funded by the European Commission and the Hôpitaux Universitaires de Strasbourg.

The purpose of this project is to create a harmonised, high-quality GDPR-compliant registry specific for RED (so-called REDgistry) which will be integrated in the European Rare Disease Registry Infrastructure (ERDRI) in accordance to the FAIR principles and integrated in the European rare disease ecosystem.

The REDgistry has now a new website dedicated to this project !

Visit the new REDgistry website