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Russell Wheeler - Winner of the 2019 EURORDIS Black Pearl AwardsRussell Wheeler - Winner of the 2019 EURORDIS Black Pearl Awards


The EURORDIS Black Pearl Awards is an annual event held in Brussels to recognise the outstanding achievements and exceptional work of people making a difference for the rare disease community. Taking place in February to mark the occasion of Rare Disease Day, this event celebrates the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives. The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.

Russell Wheeler, ERN-EYE ePAG representative, won the EURORDIS Volunteer Awards for his exceptional work as a patient advocate for all rare eye conditions (through LHON Society and  as a patient board member of ERN-EYE) and for all rare diseases in his work as one of EURORDIS’ longstanding volunteers.

More info about the EURORDIS Black Pearl Awards

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