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Next ECRD will take place fully online from 27 June until 1st July 2022

The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community  – patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators.

The next ECRD will take place fully online from 27 June until 1st July 2022.

Last year, over 1500 participants convened to the ECRD 2020, from 57 countries – representing all stakeholders – to place rare diseases in the spotlight during this two day online conference. The event provided the opportunity to co-design policy options today that can lead to better conditions for people living with rare diseases for the years ahead. ECRD attendees spent the course of the conference laying the foundation of these preparations and all of you are invited to continue your involvement in Rare 2030 throughout the year!

Registration categories and fees

Delegate category  Registration Fees
EURORDIS members* patients’ organisations and RDI members patients’ organisations  45 €
Non-EURORDIS members patients’ organisations  75 €
ERN representatives/ academics / healthcare professionals/ researchers  150 €
EURORDIS Round Table of Companies members**  980 €
Healthcare industry, consultants, investors  1225 €
Payer bodies/ HTA agencies/ national competent authorities/ regulators/ policy makers or government workers  Complimentary
Medical Students 45 €
Speakers at ECRD Please do not use the button below, you have been/will be provided a specific registration link via email

*more information on how to become a EURORDIS member
**more information on how to join the EURORDIS Round Table of Companies

More information about ECRD 2022

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