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Improve care of EU citizens with Rare Eye Disease (RED) 

The vision of ERN–EYE is dedicated to EU patients with RARE EYE DISEASES (RED) bringing expertise and knowledge for immediate and future best care.

The ERN-EYE will have the following objectives carried out by the subthematic and transversal teams:


Facilitate improvement in diagnosis and delivery for health careby electronic strategies developed in a virtual Eye clinic EyeClin including diagnostic, genetic and care expertises  


Facilitate mobility of expertiseby producing guidelines, EU wide training/education programm, sharing expertise in the EyeClin system with EU experts


Exploit innovations in medical science and health technology: by empowering clinical trials and by patient centered approaches for research


Reinforce research and epidemiological surveillance: by the design and use of an ERN-EYE registry and by bottom-up research projects generated or stimulated by ERN-EYE


Help member state(s) with insufficient number of patients: by promoting affiliated partners with full access to the ERN-EYE services, by the use of EyeClin eventually facilitating cross border referral, by exchanges and training/education programms.

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Conference of ophtalmology

The 2nd Conference Ophthalmology Journal is organized by Via Medica and will be held during Feb 09 - 10, 2018 at LublinLubelskie, Poland.

4th European Days of Albinism (4EDA)

 4EDA will take place in Norway, March 7th-10th, 2018.

European Course on Genetics in Hereditary Retinal Disease

The European Course on Genetics in Hereditary Retinal Disease will take place on December 1-2, 2017 with Scientific Coordination of Prof. Carel Hoyng and Prof. Camiel J. F. Boon, member of ERN-EYE.

International Congress On Research Of Rare And Orphan Diseases

Re(act) Congress, 7th-10th March in Bologna

RD-ACTION & DG Sante Workshop

RD-ACTION and DG Sante organize a workshop on 6th and 7th December 2017 at Istituto Superiore di Sanita in Italy. 

ARVO 2018 Annual Meeting

The ARVO 2018 Annual Meeting in Honolulu, Hawaii, will gather 11,000 international basic and clinical researchers and share the latest breakthroughs in vision research.




This ERN is supported by: