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Update: 02.07.2020
Update about COVID-19 and Rare Eye Diseases
Blind and visually impaired people: protective measures at your fingertips!
This video provides useful information about protective measures that require more vigilance so that they are carried out properly by both visually impaired people and their family or caregiver.
It was made by Dowino creative studio in France. It has been adapted in English by ERN-EYE with the help of one of the ePAG patients.
General information
You will find hereafter COVID-19 fight general informations by way of links of various European and International official sites from institutions, bodies and agencies as well as from European Rare Diseases structures or Patient communities.
- Information from institutions, bodies and agencies
WHO : Coronavirus ( COVID-19 ) advice for public
EUROPEAN COMMISSION : COVID response
EUROPEAN COMMISSION : ERNs and COVID-19
EUROPEAN COMMISSION : CPMS for COVID-19
EMA : Statement on the Guidance on the Management of Clinical trials during COVID-19 pandemic
EMA : latest updates about Coronavirus
- European Rare Diseases structures and Patient communities
ORPHANET : website on COVID-19 and Rare Diseases
EURORDIS : COVID-19 information ressource centre
EURORDIS Statement : the rare disease community alerts over discrimination in critical care
Ophthalmic COVID-19 information
- Learned societies - Professional groups
EURETINA : latest COVID-19 Updates
AAO : Important coronavirus updates for ophthalmologists
SFO : The French Society of Ophthalmology COVID-19 information
Polish Society of Ophthalmologists : COVID-19 recommendations
Royal College of Ophthalmology : COVID-19 clinical guidance for ophthalmologists
German Ophthalmological Society : COVID-19 recommendations
European Retinoblastoma Group : COVID-19 recommendations
- Patient associations - Patient groups
Usher Initiative Austria : Guidelines for Usher Syndrome and other related syndromes
Retina International : Use of Chloroquine
Eurordis : Rare Barometer survey on rare disease patients’ experience of COVID-19
ERN-EYE experts'editorial : "Hydroxychloroquine hitting the headlines - retinal considerations"
Flash info 02 : What is the chance of SARS-CoV-2 virus transmission with tears or conjunctiva?
Flash info 03 : Recommendations for patients with uveitis during the COVID-19 Pandemic
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