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Rare disease community raises alert over discrimination in critical care guidelines during COVID-19 pandemic

EURORDIS urges immediate action and proposes concrete solutions

31 March, Paris - EURORDIS-Rare Diseases Europe is alarmed by reports from member organisations and individuals that people living with a rare disease are being discriminated against in critical care guidelines designed to steer emergency/ ICU doctors in the prioritisation of patients during the COVID-19 pandemic (documented inGermany,the Netherlands, Spain, UK and Switzerland, and based on non-documented reports from Belgium, France and Italy). Eurordis urge policy makers and authorities in Europe and around the world not to leave behind people living with severe chronic diseases, rare diseases or disabilities during this crisis, and to take action to protect these populations in line with the proposals listed below.

 

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