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Rare Barometer survey on rare disease patients’ experience of COVID-19COVID-19 Eurordis Survey

  Are you affected by a rare disease or a caring for someone affected by a rare disease? 

Share you experience and tell Eurordis how of the COVID-19 pandemic is affecting you by completing this survey available in 23 languages and open to rare disease patients, family members and carers around the world.
 
The survey will only take around 15 minutes to answer and will help EURORDIS to understand your experience of the COVID-19 pandemic.

The goal is to voice the specific needs of rare disease patients’ in relation to the COVID-19 pandemic and to propose practical solutions to ensure rare diseases patients are taken into account when handling the pandemic.  

Link to the Eurordis Survey

 

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