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Interview of the month - Dr Giacomo Maria Bacci

Every month, ERN-EYE invites you to meet an active person within the network through a short interview. This month, it's Dr Giacomo Bacci, from the AOU Careggi - AOU Meyer Consortium in Florence, Italy.

 

"The best advances of ERN-EYE are mainly related to the support of every HCPs about the definition of rare eye disease using the virtual clinic, the clinical patient management system, with RED-VAR and GREET meetings that really improved the establishment of correct diagnosis and to put concrete conclusions to manage rare diseases."

I'm Giacomo Bacci, I work in Florence in the pediatric HCP: Meyer Children's Hospital. I deal with pediatric rare eye diseases in close collaboration with the other HCP in Florence, Careggi Hospital, with whom there is a consortium participation to ERN-EYE. In ERN-EYE network, my concrete role is related to diagnose rare eye disease and to support and be supported by other pediatric HCP of the network in the definition of rare eye diseases. 

In your opinion, what is the most important issue ERN-EYE could overcome?

I think the most important issue that ERN-EYE should overcome is the integration with the health care systems across Europe together with the integration of services in Europe because I think that one of the most important things to do within ERN-EYE is to become part of the health system across Europe.

What are the main challenges of the network?

As we faced during the meetings, I think the main challenges are related to generation of REDgistries and the proposal for guidelines: these are the main two challenges that ERN-EYE should overcome in the next years.

And the best advances?

I do agree that the best advances are mainly related to the support of every HCPs about the definition of rare eye disease using the virtual clinic, the clinical patient management system, with RED-VAR and GREET meetings that really improved the establishment of correct diagnosis and to put concrete conclusions to manage rare diseases. 

In your dreams, what would ERN-EYE look like in 10 years?

In the next 10 years if ERN-EYE should overcome all the challenges, it probably could be no more necessary . But from a more realistic point of view, if ERN-EYE will continue to support clinicians and patients, with also the involvement of patients organizations and more and more involvement for clinicians in activities, it should be the real added value to be part of this network.

 

 

Watch the interview on YouTube

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