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Reference Center Rare Diseases 'Genetic Sensory Diseases', MAOLYA, Montpellier, France

FRANCE

Labelized in 2004, MAOLYA is a national reference center for the diagnosis and management of multisensory inherited diseases with isolated or associated ocular, hearing and neurological involvements in children and adults. In regards with this specificity, Maolya and ARAMAV, a specialized and national low vision rehabilitation center developed a global care program and network (Rush) with the collaboration of deaf rehabilitation services for Usher patients that are affected by a congenital hearing loss followed by a progressive retinitis pigmentosa. In the same way, a multidisciplinary outclinic visit is proposed for patients with Wolfram disease.

 

Picture: Vpe