Comment contacter le centre
Centre de soins de santé
dans le cadre du Plan Maladies Rares 2006-2011, réétiquetage en 2017. OPHTARA est
consortium unique au sein d'ERN-EYE avec 5 sites du CHU de Paris : Necker
(site coordinateur), Pitié Salpetrière, HEGP, Cochin et Hôtel Dieu (sites composantes).
Photo : Célette
Contactez-Nous
OPHTARA – AP-HP, Hôpital Necker-Enfants Malades, Paris, France
équipe
Pr Dominique BREMOND-GIGNAC
France
Dr Alejandra Daruich-Matet
France
Pr Matthieu Robert
France
Essais cliniques
Open-label, Single-arm, Multicenter Study to Assess the Safety of Cystadrops® in Pediatric Cystinosis Patients From 6 Months to Less Than 2 Years Old
Study of the efficacy of Befizal® 200mg in the treatment of Leber’s hereditary optic neuropathy
Function of the Pigment Epithelium in Patients With Type 1 Neurofibromatosis (NEF-1)
Interest of Intravitreal Injections of Anti-VEGF as Initial and Adjuvant Treatment in Coats Disease.
A phase II, open-label, efficacy study of daily administration of sodium valproate in patients clinically affected by Wolfram syndrome due to monogenic mutation.
A Non-interventional Study of Clinical Experience in Patients Prescribed Raxone® for the Treatment of Leber’s Hereditary Optic Neuropathy (LHON).
Efficacy, Safety and Pharmacokinetics of 3 Doses of REC 0/0559 Eye Drops for the Treatment of Stage 2 (Moderate) and 3 (Severe) Neurotrophic Keratitis in Adult Patients
An International Prospective Natural History Study in Children With a Type II Collagen Disorder With Short Stature
Genetic Study of Patients Suffering From Congenital Amaurosis of Leber or From an Early Severe Retinal Dystrophy.
Genetic Decryption of Leber Congenital Amaurosis (LCA) in a Large Cohort of Independent Families.