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Public Consultation on the Strategic Research & Innovation Agenda of the future European Rare Diseases Partnership

Under Horizon Europe, the European Commission together with member states and associated countries decided to implement the Rare Diseases Partnership which brings a unique vision that aims at leaving no one behind by supporting robust patient need-led research, by utilising and maximising the power of health and research data, by engaging and coordinating regional, national, EU and international alignment in order to accelerate the development of new treatments and diagnostic pathways.

To build its strategy on the voice and input of all stakeholders and as part of the preparatory process of this future Rare Diseases Partnership (foreseen start in 2024) the Strategic Research and Innovation Agenda of the RD Partnership is now open for public consultation. The aim is to gather inputs of all types of stakeholders to make sure that the actions of the partnership will fit the needs and expectations of rare diseases community.


Link to share your opinion here before 9 June 2023


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This ERN is supported by: