NEWS

Organised by EURORDIS-Rare Diseases Europe, and co-organised by Orphanet and DIA, the 9th edition of the European Conference on Rare Diseases & Orphan Products took place in Vienna from 10 – 12...

The EURORDIS Black Pearl Awards is an annual event held in Brussels to recognise the outstanding achievements and exceptional work of people making a difference for the rare disease community.

The launching of the ERN-EYE dedicated helpdesk started the 1st of October.

The leaders of each clinical WG have been able to test the platform and give their feedback.

 

Associate Professor Petra Lišková introduced the network and its main goals to the Czech ophthalmologists.

The meeting brought together members of the association to discuss advances in research on Alström syndrome.