ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases

Rare Eye Diseases display major heterogeneity and represent the leading cause of visual impairment/visual loss in children & young adults. Significant barriers remain for early diagnosis, patient management & research. EU experts decided to join forces in a European Reference Network.

I am a patient :

What ERN can do for me?

What is ERN-EYE?

Where can I find an expert center?

Who are the patient representatives?

Where can I find ongoing clinical trials?

Patient testimonies

I am a professional :

What is ERN-EYE?

Where can I find an expert center?

What is the virtual clinic (CPMS)?

What ERN can do for me?

Where can I find ongoing clinical trials?

Connection to the ERN-EYE member area

What is ERN-EYE? Find out in video!

Map of the ERN-EYE members across Europe (click here to read it)

Check out more information about ERNs: ERNs press release / ERNS brochure / ERNs flyer / ERNs memo.

About the ERN initiative

Recent news

EVI TOP LIST of excellent Women in European Vision Research and Ophthalmology 2021

The awardees include nearly ten ERN-EYE members. Congratulations to them!

EURORDIS Blackpearl Awards

Don't miss your chance to nominate your star of the rare disease community, or enter yourself, for one of the EURORDIS Black Pearl Awards 2022.

Rare disease patients' opinion on the future of rare diseases

Disclaimer

ERN-EYE is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.