NEWS

RD-Action published a report on the conclusions and next steps from the workshop ‘How ERNs can provide added value in the area of clinical research’. 

Artur Klett, ERN-EYE member and expert of rare oculoplastic and ophthalmooncological diseases, visited Eye disease clinic of Children's Clinical University Hospital in Riga on 15th-16th of November.

The European Commission published a new video to understand what is an ERN and how it works.

Organised by EURORDIS-Rare Diseases Europe, and co-organised by Orphanet and DIA, the 9th edition of the European Conference on Rare Diseases & Orphan Products took place in Vienna from 10 – 12...

The EURORDIS Black Pearl Awards is an annual event held in Brussels to recognise the outstanding achievements and exceptional work of people making a difference for the rare disease community.

The launching of the ERN-EYE dedicated helpdesk started the 1st of October.