NEWS

EURORDIS held a webinar on 4th May 2023 on "Rare Disease National Networks & ERN National Coordination Hubs".

The monitoring for 2022 has been successfully completed and submitted.

The course “Development of Clinical Practice Guidelines” is already available in the EU Academy of the European Commission.

ERN-EYE organised its 7th General Annual Meeting from March 23rd to 24th in Ljubljana, Slovenia.

Meetings dedicated to discuss the features of the New CPMS occured in January and February within a dedicated Business Implementation Group (BIG).

Isabella Vacchi is our new project manager with Dorothée Leroux!