Kuidas keskusega ühendust võtta
HCP keskus
Haruldaste haiguste kava 2006-2011 osana, uuesti märgistamine 2017. OPHTARA on
ERN-EYE ainulaadne konsortsiumiosa koos 5 Pariisi ülikooli haigla asukohaga: Necker
(koordinaatori asukoht), Pitié Salpetrière, HEGP, Cochin ja Hôtel Dieu (koostiskohad).
Pilt: Celette
Saada sõnum
OPHTARA – AP-HP, Hôpital Necker-Enfants Malades, Paris, France
meeskond
Pr Dominique BREMOND-GIGNAC
Prantsusmaa
Dr Alejandra Daruich-Matet
Prantsusmaa
Pr Matthieu Robert
Prantsusmaa
Kliinilised uuringud
Open-label, Single-arm, Multicenter Study to Assess the Safety of Cystadrops® in Pediatric Cystinosis Patients From 6 Months to Less Than 2 Years Old
Study of the efficacy of Befizal® 200mg in the treatment of Leber’s hereditary optic neuropathy
Function of the Pigment Epithelium in Patients With Type 1 Neurofibromatosis (NEF-1)
Interest of Intravitreal Injections of Anti-VEGF as Initial and Adjuvant Treatment in Coats Disease.
A phase II, open-label, efficacy study of daily administration of sodium valproate in patients clinically affected by Wolfram syndrome due to monogenic mutation.
A Non-interventional Study of Clinical Experience in Patients Prescribed Raxone® for the Treatment of Leber’s Hereditary Optic Neuropathy (LHON).
Efficacy, Safety and Pharmacokinetics of 3 Doses of REC 0/0559 Eye Drops for the Treatment of Stage 2 (Moderate) and 3 (Severe) Neurotrophic Keratitis in Adult Patients
An International Prospective Natural History Study in Children With a Type II Collagen Disorder With Short Stature
Genetic Study of Patients Suffering From Congenital Amaurosis of Leber or From an Early Severe Retinal Dystrophy.
Long-Term Non-Interventional Latanoprost Study
Genetic Decryption of Leber Congenital Amaurosis (LCA) in a Large Cohort of Independent Families.