Replay - ERN-EYE Webinars

ERN-EYE webinar (29th June 2023) 

Foveal Hypoplasia: a big diagnostic dilemma

With Dr Giacomo Bacci AOU Careggi - AOU Meyer Consortium, Firenze, Italy;  Dr Pina Fortunato AOU Careggi - AOU Meyer Consortium, Firenze, Italy and Dr Sara Bargiacchi, AOU Careggi - AOU Meyer Consortium, Firenze, Italy.

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ERN-EYE webinar (23rd June 2023) 

Idiopathic Intracranial Hypertension

With Dagmar Beier, Dpt. of Neurology, Odense University Hospital, Denmark ; Gabriel Bsteh, Dpt. of Neurology, Medical University of Vienna, Austria and Susan Mollan, Dpt. of Ophthalmology, University Hospitals Birmingham, UK.

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ERN-EYE webinar (5th June 2023) 

Genetic Testing Strategies for Rare Eye Diseases

With Elfride De Baere, Ghent University Hospital, Ghent, Belgium; Lonneke Haer-Wigman, Radboud University Medical Center, Nijmegen, The Netherlands and Frans PM Cremers, Radboud University Medical Center, Nijmegen, The Netherlands.

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ERN-EYE webinar (4th May 2023)  

Coats Disease

With Pr Francis Munier, Hôpital ophtalmique Jules-Gonin, Lausanne, Switzerland; Dr Alejandra Daruich, Necker-Enfants Malades Hospital, Paris, France; Pr Şengül Özdek, Gazi University Medical Faculty, Ankara, Turkey; Dr Arvydas Gelzinis, Hospital of Lithuanian University of Health Sciences, Kauno Klinikos, Kaunas, Lithuania; Dr Dovile Buteikiene, Hospital of Lithuanian University of Health Sciences, Kauno Klinikos, Kaunas, Lithuania; Dr Javier Coca-Robinot, Hospital La Paz, Madrid Spain; Dr Oriana D’Anna Mardero, Hospital La Paz, Madrid Spain.

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ERN-EYE webinar (23rd November 2022)  

Paediatric neuro-ophthalmology pearls

With Manca Tekavčič Pompe, University Eye Clinic Ljubljana, Slovenia, Christina Gerth-Kahlert, Universitätsspital Zürich, Switzerland, Sanil Shah, Oxford University Eye Hospital, United Kingdom, Maja Šuštar Habjan, University Eye Clinic Ljubljana, Slovenia and Susana Noval Martín, Hospital Universitario La Paz, Madrid, Spain.

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ERN-EYE webinar (3rd February 2022)

Neurofibromatosis 1 & 2: An Overview

With Pr Eric Legius, Center for Medical Genetics, Leuven University Hospital (Belgium), Pr Dominique Brémond-Gignac, Reference Center OPHTARA, Hôpital Necker-Enfants Malades, Paris, (France) Pr Matthieu Robert, Reference Center OPHTARA, Hôpital Necker-Enfants Malades, Paris, (France), Pr Kathleen Claes, Center for Medical Genetics, Ghent University Hospital, (Belgium) & Claas Röhl, Austrian center of expertise for Neurofibromatosis, Vienna (Austria), Member of the executive board of the ERN GENTURIS.

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ERN-EYE webinar (27th April 2021)

Marfan Syndrome: an update

With Pr Bart P Leroy, head of Department of Ophthalmology in Ghent University Hospital (Belgium), Dr Elke O. Kreps, MD, staff member Corneal and External Disease at Ghent University Hospital (Belgium) & Pr Julie De Backer, MD, PhD, genetic cardiologist at Ghent University Hospital (Belgium).

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ERN-EYE webinar (22nd April 2021)

Papilloedema & COVID vaccination

With Dr Axel Petzold (Amsterdam UMC, The National Hospital for Neurology and Neurosurgery, Queen Square & Moorfields Eye Hospital, UK) and Dr Steffen Hamann (Rigshospitalet, University of Copenhagen, Denmark).

2021 Retina International awards

23rd February 2021

Presented to Dr. Frans Cremers and Dr. Frank Brunsmann

for their longstanding and significant contributions

to the global retina community.

ERICA and EJP-RD Webinar - Framework for patient engagement in clinical trials

24th May 2023

ERICA and EJP-RD Webinar - Introduction on Patient-Reported Outcomes and considerations before including them in a clinical trial. Study case from the ERN-EuroBloodNet

10th May 2023

EURORDIS Partnership Webinars: Rare Disease National Networks & ERN National Coordination Hubs

4th May 2023

ERICA and EJP-RD Webinar - Essential requirements before thinking about a clinical trial

28th February 2023

ERICA and EJP-RD Webinar - Does Randomization matter in clinical trials? 

14th December 2021