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als Teil des Plans für seltene Krankheiten 2006-2011, Neukennzeichnung im Jahr 2017. OPHTARA ist
einzigartiges Konsortium, Teil von ERN-EYE mit 5 Standorten des Pariser Universitätsklinikums: Necker
(Koordinatorstandort), Pitié Salpetrière, HEGP, Cochin und Hôtel Dieu (Komponentenstandorte).
Bild: Celette
Kontakt
OPHTARA – AP-HP, Hôpital Necker-Enfants Malades, Paris, France
Team

Pr Dominique BREMOND-GIGNAC
Frankreich

Pr Alejandra Daruich-Matet
Frankreich

Pr Matthieu Robert
Frankreich
Klinische Studien

Open-label, Single-arm, Multicenter Study to Assess the Safety of Cystadrops® in Pediatric Cystinosis Patients From 6 Months to Less Than 2 Years Old

Study of the efficacy of Befizal® 200mg in the treatment of Leber’s hereditary optic neuropathy

Function of the Pigment Epithelium in Patients With Type 1 Neurofibromatosis (NEF-1)

Interest of Intravitreal Injections of Anti-VEGF as Initial and Adjuvant Treatment in Coats Disease.

A phase II, open-label, efficacy study of daily administration of sodium valproate in patients clinically affected by Wolfram syndrome due to monogenic mutation.

A Non-interventional Study of Clinical Experience in Patients Prescribed Raxone® for the Treatment of Leber’s Hereditary Optic Neuropathy (LHON).

Efficacy, Safety and Pharmacokinetics of 3 Doses of REC 0/0559 Eye Drops for the Treatment of Stage 2 (Moderate) and 3 (Severe) Neurotrophic Keratitis in Adult Patients

An International Prospective Natural History Study in Children With a Type II Collagen Disorder With Short Stature

Genetic Study of Patients Suffering From Congenital Amaurosis of Leber or From an Early Severe Retinal Dystrophy.

Long-Term Non-Interventional Latanoprost Study

Genetic Decryption of Leber Congenital Amaurosis (LCA) in a Large Cohort of Independent Families.