NEWS

The ERN-EYE Transversal working Group 5 created a survey to get an overview of existing low vision services in Europe.

ERICA is launching a survey to collect information on the status quo of ERNs and Clinical Research.

The aim is to gather inputs of all types of stakeholders to make sure that the actions of the partnership will fit the needs and expectations of rare diseases community.

EURORDIS held a webinar on 4th May 2023 on "Rare Disease National Networks & ERN National Coordination Hubs".

The monitoring for 2022 has been successfully completed and submitted.

The course “Development of Clinical Practice Guidelines” is already available in the EU Academy of the European Commission.