Latvia 

Usual Rare Eye Diseases

consultations

Urgent consultations are maintained. We go through all patient list and choose patients who cannot be postpone. We ask parents to check vision with right and left eye with and without glasses and send our patient eye's photo.  

If closed, teleconsultations

access

There are Zoom consultations.

Link to Zoom consultations

Intra-vitreal therapies

(i.e.anti VEGF)

We don t have intravitreal therapies. We have some patients with biologic therapy. They continue therapy as before. Intra-arterial therapy for retinoblastoma treatment continue.

Eye emergencies link for

RED complications

Eye emergencies are continued. Necessary eye operations for congenital cataracts, congenital glaucomas, etc rare conditions continue.

Information about telemedicine consultations in CCUH Eye diseases clinic

Genetic testing for RED:

maintained/discontinued

The guidelines for genetic testing in COVID-19 time is similar to these how it was previous. All patients with treatable rare diseases and rare eye diseases till 6 monthes and one year, where genetic testing will give some impact for treatment are continuing to test.

More information

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

At the moment I can’t answer. I asked this question to school and center for visually impaired and blind children. I will write answer as soon as they will write me.

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

We have parents group for congenital cataract patients, they are working and giving information in Facebook.

We are working together with them and trying to speak with all rare eye diseases patients’ parents.

We are thinking about some information for Rare eye diseases patients through Rare diseases coordination center. 

Group for parents of children with congenital cataracts

Information for CCUH patients and their parents

Information about Rare diseases coordination center and support for rare diseases patients in COVID19 time

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

We are working on this.

Clinical trials for RED:

• inclusions ongoing/postponed

• follow up visits: done on time/ delayed

• Are patients under trial with COVID identified as having an adverse effect Yes/No

• Industry cope? Yes/No

We are working on this.