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Update: 08.06.2020
Link to the national reference network for rare eye diseases SENSGENE in France
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Usual Rare Eye Diseasesconsultations |
Planc blanc. Only emergencies and consultations that cannot be postponed (pregnancies, tumours,…) are maintained. |
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If closed, teleconsultationsaccess |
Yes, if the clinic can be done by phone (genetic results , genetic counseling, psychological support,…) Contact : By phone :
By e-mail: |
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Intra-vitreal therapies(i.e.anti VEGF) |
These are done by the ophthalmology department of the Hôpitaux Universitaires de Strasbourg with a minimal protocol. Contact : Dr David Gaucher, +33 3 69 55 02 70 |
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Eye emergencies link forRED complications |
Yes emergencies are done by the ophthalmology department of the Hôpitaux Universitaires de Strasbourg with a minimal protocol Contact : Urgences ophtalmologiques, + 33 3 69 55 04 35 |
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Genetic testing for RED:maintained/discontinued |
Yes, only urgent cases are done (pregnancies mainly), the national sequencing platforms are closed. |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
Information from Ministery of Health: Information for people with disabilities: |
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specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
French Federation of blind people: |
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specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
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Clinical trials for RED:
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All novel inclusions are stopped and postponed. Follow up visits are delayed unless important medical followup is warranted or incase of adverse event . We works closely with industry . We have national recommendation for clinical studies
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Usual Rare Eye Diseasesconsultations |
Yes. |
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If closed, teleconsultationsaccess |
Yes if needed. |
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Eye emergencies link forRED complications |
Specific email. |
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Genetic testing for RED:maintained/discontinued |
Yes, degraded mode. |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
No. |
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specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
See SENSGENE website and the websites of associations : Ouvrir les yeux and Association du syndrome de Wolfram have collected data/guidelines for their pathologies Link to the national reference network for rare eye diseases SENSGENE in France |
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specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
|
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Intra-vitreal therapies(i.e.anti VEGF) |
Less patients for distancing. |
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Clinical trials for RED:
|
|
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Usual Rare Eye Diseasesconsultations |
Yes. |
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If closed, teleconsultationsaccess |
Yes if needed. |
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Eye emergencies link forRED complications |
+ 33 1 58 41 22 01 |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
No. |
![]() |
specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
See SENSGENE website and the websites of associations : Ouvrir les yeux and Association du syndrome de Wolfram have collected data/guidelines for their pathologies Link to the national reference network for rare eye diseases SENSGENE in France |
![]() |
specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
|
![]() |
Usual Rare Eye Diseasesconsultations |
Yes. |
![]() |
If closed, teleconsultationsaccess |
Yes if needed. |
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Eye emergencies link forRED complications |
+ 33 1 42 16 32 01 |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
No. |
![]() |
specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
See SENSGENE website and the websites of associations : Ouvrir les yeux and Association du syndrome de Wolfram have collected data/guidelines for their pathologies Link to the national reference network for rare eye diseases SENSGENE in France |
![]() |
specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
|
![]() |
Usual Rare Eye Diseasesconsultations |
It is possible to have consultation. |
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If closed, teleconsultationsaccess |
Yes. |
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Intra-vitreal therapies(i.e.anti VEGF) |
Not performed at HEGP usually. |
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Eye emergencies link forRED complications |
christophe.orssaud@aphp.fr |
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Genetic testing for RED:maintained/discontinued |
We take blood samples for genetic research. But the analysis could be delayed. |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
No. |
![]() |
specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
See SENSGENE website and the websites of associations : Ouvrir les yeux and Association du syndrome de Wolfram have collected data/guidelines for their pathologies Link to the national reference network for rare eye diseases SENSGENE in France |
![]() |
specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
Link to the French society of ophthalmology
|
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Usual Rare Eye Diseasesconsultations |
Maintained. |
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If closed, teleconsultationsaccess |
Tel: +33 1 40 02 14 30
|
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Intra-vitreal therapies(i.e.anti VEGF) |
Tel: +33 1 40 02 14 30
|
![]() |
Eye emergencies link forRED complications |
Tel: +33 1 40 02 14 30
|
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Genetic testing for RED:maintained/discontinued |
Email: cic@15-20.fr |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
No. |
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specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
See Retina France website: |
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specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
Link to the French society of ophthalmology
|
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Usual Rare Eye Diseasesconsultations |
Maintained. |
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If closed, teleconsultationsaccess |
NA |
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Intra-vitreal therapies(i.e.anti VEGF) |
Maintained but NA for CRNK |
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Eye emergencies link forRED complications |
+ 33 5 61 77 23 44 |
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Genetic testing for RED:maintained/discontinued |
No. |
![]() |
specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
No. |
![]() |
specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
See SENSGENE website: |
![]() |
specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
Link to the French society of ophthalmology
|
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Clinical trials for RED:
|
Clinical trials are ongoing |
Link to the website of the Ministery of Health in France