Germany

Usual Rare Eye Diseases

consultations

Working normally.

If closed, teleconsultations

access

n.a.

Intra-vitreal therapies

(i.e.anti VEGF)

As usual.

Eye emergencies link for

RED complications

Genetic testing for RED:

maintained/discontinued

Genetic testing possible as usual.

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

National network started in 08/2020, coordination Katarina Stingl, MD.

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

Retina international website

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

http://cms.augeninfo.de/hauptmenu/infos-fuer-aerzte/leitlinien.html

are guidelines for ophth. diagnoses from the ophth. association

Clinical trials for RED:

• inclusions ongoing/postponed

• follow up visits: done on time/ delayed

• Are patients under trial with COVID identified as having an adverse effect Yes/No

• Industry cope? Yes/No

Clinical trials for RED currently running according to the protocols, no postponing. The overview about clinical trials for retinal dystrophies on the link from the University Hospital Tübingen:

https://www.medizin.uni-tuebingen.de/de/das-klinikum/einrichtungen/kliniken/augenklinik/ambulanzen-sprechstunden/erbliche-netzhautdegenerationen

Usual Rare Eye Diseases

consultations

Yes.

If closed, teleconsultations

access

Intra-vitreal therapies

(i.e.anti VEGF)

These quality as emergency.

Eye emergencies link for

RED complications

Yes.

Website Uniklinikum

Genetic testing for RED:

maintained/discontinued

 No.

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

No.

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

Pro Retina Deutschland

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

DOG website

Clinical trials for RED:

• inclusions ongoing/postponed

• follow up visits: done on time/ delayed

• Are patients under trial with COVID identified as having an adverse effect Yes/No

• Industry cope? Yes/No

Usual Rare Eye Diseases

consultations

Clinic open again for selective appointments, but extend is adapted to keep distances.

If closed, teleconsultations

access

Intra-vitreal therapies

(i.e.anti VEGF)

Clinic open again for selective appointments, but extend is adapted to keep distances.

Eye emergencies link for

RED complications

Emergencies are continued, no specific link for rare eye diseases

Genetic testing for RED:

maintained/discontinued

Maintained.

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

No.

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

No. 

Clinical trials for RED:

• inclusions ongoing/postponed

• follow up visits: done on time/ delayed

• Are patients under trial with COVID identified as having an adverse effect Yes/No

• Industry cope? Yes/No

• reactivated
• reactivated
• no cases
• Sponsors proceed as usual but accept COVID-related resctriction for visits