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Update: 02.09.2020

 

Link to the national network of rare diseases NAMSE

Empfehlungen für Patienten mit Uveitis während der COVID-19 Pandemie

 

 

Updates from :

 

 

 

Health Care Provider Name: University of Tuebingen, Center for Ophthalmology, Germany.

Contact Name: Dr Katarina Stingl, HCP representative.

 

Link to the Zentrum für Seltene Erkankungen of Tübingen

 

 

 

 

 Professional

Usual Rare Eye Diseases

consultations

Working normally.
 Picto Helpdesk

If closed, teleconsultations

access

n.a.
 Retinal

Intra-vitreal therapies

(i.e.anti VEGF)

As usual.
 Teleconsultation

Eye emergencies link for

RED complications

 Eye emergencies always continued, special department and contact persons for rare eye diseases (this is unrelated to COVID-19).
 Genetics

Genetic testing for RED:

maintained/discontinued

Genetic testing possible as usual.
 Guidelines

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

National network started in 08/2020, coordination Katarina Stingl, MD.
 Guidelines

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

Retina international website
 Guidelines

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

https://augeninfo.de/leit/index.html

are guidelines for ophth. diagnoses from the ophth. association
 

Clinical trials for RED:

  • inclusions ongoing/postponed

  • follow up visits: done on time/ delayed

  • Are patients under trial with COVID identified as having an adverse effect Yes/No

  • Industry cope? Yes/No

Haven’t had any COVID patient

Very cooperative

 

 

Health Care Provider Name: Eye Center, University Hospital Freiburg, Germany.

Contact Name: Dr Daniel Böhringer.

Link to the rare disease network of the Freiburg Hospital FZSE 

 

 

 

 

 Professional

Usual Rare Eye Diseases

consultations

Yes.
 Picto Helpdesk

If closed, teleconsultations

access

 N.A.
 Retinal

Intra-vitreal therapies

(i.e.anti VEGF)

These quality as emergency.
 Teleconsultation

Eye emergencies link for

RED complications

Yes.

 

Website Uniklinikum
 Genetics

Genetic testing for RED:

maintained/discontinued

 No.
 Guidelines

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

No.
 Guidelines

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

Pro Retina Deutschland
 Guidelines

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

DOG website
 

Clinical trials for RED:

  • inclusions ongoing/postponed

  • follow up visits: done on time/ delayed

  • Are patients under trial with COVID identified as having an adverse effect Yes/No

  • Industry cope? Yes/No

 

 

 

Health Care Provider Name: University Medical Center Giessen and Marburg GmbH, Giessen Location.

Contact Name: Preising, Markus, PD Dr., Substitute

 

 

 

 

 Professional

Usual Rare Eye Diseases

consultations

Clinic open again for selective appointments, but extend is adapted to keep distances.
 Picto Helpdesk

If closed, teleconsultations

access

 
 Retinal

Intra-vitreal therapies

(i.e.anti VEGF)

Clinic open again for selective appointments, but extend is adapted to keep distances.
 Teleconsultation

Eye emergencies link for

RED complications

Emergencies are continued, no specific link for rare eye diseases
 Genetics

Genetic testing for RED:

maintained/discontinued

Maintained.
 Guidelines

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

No.
 Guidelines

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

 No.
 Guidelines

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

No. 
 

Clinical trials for RED:

  • inclusions ongoing/postponed

  • follow up visits: done on time/ delayed

  • Are patients under trial with COVID identified as having an adverse effect Yes/No

  • Industry cope? Yes/No

 

  • reactivated
  • reactivated
  • no cases
  • Sponsors proceed as usual but accept COVID-related resctriction for visits

 

Link to the website of the Ministery of Health in Germany

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