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Update: 28.05.2020

 

Link to the national network of rare diseases NAMSE

Empfehlungen für Patienten mit Uveitis während der COVID-19 Pandemie

 

 

Updates from :

 

 

 

Health Care Provider Name: University of Tuebingen, Center for Ophthalmology, Germany.

Contact Name: Dr Katarina Stingl, HCP representative.

 

Link to the Zentrum für Seltene Erkankungen of Tübingen

 

 

 

 

 Professional

Usual Rare Eye Diseases

consultations

Back to normal.
 Picto Helpdesk

If closed, teleconsultations

access

You can call +49 7071 2988620.
 Retinal

Intra-vitreal therapies

(i.e.anti VEGF)

Maintained.
 Teleconsultation

Eye emergencies link for

RED complications

Emergencies continued, but no specific link for rare eye diseases.
 Genetics

Genetic testing for RED:

maintained/discontinued

 Maintained.
 Guidelines

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

No.
 Guidelines

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

Retina international website
 Guidelines

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

No. 
 

Clinical trials for RED:

  • inclusions ongoing/postponed

  • follow up visits: done on time/ delayed

  • Are patients under trial with COVID identified as having an adverse effect Yes/No

  • Industry cope? Yes/No

Back to normal.

 

 

Health Care Provider Name: Eye Center, University Hospital Freiburg, Germany.

Contact Name: Dr Daniel Böhringer.

Link to the rare disease network of the Freiburg Hospital FZSE 

 

 

 

 

 Professional

Usual Rare Eye Diseases

consultations

Normally not qualify as emergency (exception: retinopathy of prematurity).
 Picto Helpdesk

If closed, teleconsultations

access

We have set up a ticket based telephony system based on jitsi.

Teleconsultation
 Retinal

Intra-vitreal therapies

(i.e.anti VEGF)

These quality as emergency.
 Teleconsultation

Eye emergencies link for

RED complications

Yes.
 Genetics

Genetic testing for RED:

maintained/discontinued

 No.
 Guidelines

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

No.
 Guidelines

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

 No.
 Guidelines

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

No. 
 

Clinical trials for RED:

  • inclusions ongoing/postponed

  • follow up visits: done on time/ delayed

  • Are patients under trial with COVID identified as having an adverse effect Yes/No

  • Industry cope? Yes/No

Only for intravitreal injections (no trial active at this time).

 

 

Health Care Provider Name: University Medical Center Giessen and Marburg GmbH, Giessen Location.

Contact Name: Preising, Markus, PD Dr., Substitute

 

 

 

 

 Professional

Usual Rare Eye Diseases

consultations

Clinic open again for selective appointments, but extend is adapted to keep distances.
 Picto Helpdesk

If closed, teleconsultations

access

 
 Retinal

Intra-vitreal therapies

(i.e.anti VEGF)

Clinic open again for selective appointments, but extend is adapted to keep distances.
 Teleconsultation

Eye emergencies link for

RED complications

Emergencies are continued, no specific link for rare eye diseases
 Genetics

Genetic testing for RED:

maintained/discontinued

Maintained.
 Guidelines

specific COVID guidelines from

your GOVERNMENT/TOWN/ REGION

for poorly sighted patients

(or disabled persons or persons with rare diseases)

No.
 Guidelines

specific COVID guidelines from the

PATIENT GROUPS/ASSOCIATIONS

for Poorly sighted/Blind patients

(or disabled persons or persons with rare diseases)

 No.
 Guidelines

specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIES

for ophthalmic diseases care, poorly sighted patients

(or disabled persons or persons with rare diseases)

and rare eye diseases

No. 
 

Clinical trials for RED:

  • inclusions ongoing/postponed

  • follow up visits: done on time/ delayed

  • Are patients under trial with COVID identified as having an adverse effect Yes/No

  • Industry cope? Yes/No

 

  • reactivated
  • reactivated
  • no cases
  • Sponsors proceed as usual but accept COVID-related resctriction for visits

 

Link to the website of the Ministery of Health in Germany

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