How to use the speech recognition tool?
Update: 02.09.2020
Link to the national network of rare diseases NAMSE
Empfehlungen für Patienten mit Uveitis während der COVID-19 Pandemie
Link to the Zentrum für Seltene Erkankungen of Tübingen
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Usual Rare Eye Diseasesconsultations |
Working normally. |
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If closed, teleconsultationsaccess |
n.a. |
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Intra-vitreal therapies(i.e.anti VEGF) |
As usual. |
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Eye emergencies link forRED complications |
Eye emergencies always continued, special department and contact persons for rare eye diseases (this is unrelated to COVID-19). |
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Genetic testing for RED:maintained/discontinued |
Genetic testing possible as usual. |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
National network started in 08/2020, coordination Katarina Stingl, MD. |
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specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
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specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
https://augeninfo.de/leit/index.html are guidelines for ophth. diagnoses from the ophth. association |
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Clinical trials for RED:
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Haven’t had any COVID patient Very cooperative |
Link to the rare disease network of the Freiburg Hospital FZSE
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Usual Rare Eye Diseasesconsultations |
Yes. |
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If closed, teleconsultationsaccess |
N.A. |
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Intra-vitreal therapies(i.e.anti VEGF) |
These quality as emergency. |
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Eye emergencies link forRED complications |
Yes.
|
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Genetic testing for RED:maintained/discontinued |
No. |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
No. |
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specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
|
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specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
|
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Clinical trials for RED:
|
|
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Usual Rare Eye Diseasesconsultations |
Clinic open again for selective appointments, but extend is adapted to keep distances. |
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If closed, teleconsultationsaccess |
|
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Intra-vitreal therapies(i.e.anti VEGF) |
Clinic open again for selective appointments, but extend is adapted to keep distances. |
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Eye emergencies link forRED complications |
Emergencies are continued, no specific link for rare eye diseases |
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Genetic testing for RED:maintained/discontinued |
Maintained. |
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specific COVID guidelines fromyour GOVERNMENT/TOWN/ REGIONfor poorly sighted patients (or disabled persons or persons with rare diseases) |
No. |
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specific COVID guidelines from thePATIENT GROUPS/ASSOCIATIONSfor Poorly sighted/Blind patients (or disabled persons or persons with rare diseases) |
No. |
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specific COVID guidelines from LEARNED NATIONAL/REGIONAL SOCIETIESfor ophthalmic diseases care, poorly sighted patients (or disabled persons or persons with rare diseases) and rare eye diseases |
No. |
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Clinical trials for RED:
|
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